Data Sharing

DATA OPT-OUTS – PATIENT INFORMATION LEAFLET

Type One

The Type 1 / (Read 3 Code XaZ8A) secondary uses opt-out is a code which can, at your request, be applied to your electronic medical records by your GP Practice. When a Type 1 opt-out code exists:

 

● No record-level information will be uploaded from your GP record to NHS Digital

● NHS Digital will only continue to hold information extracted from your hospital records, as well as aggregate information (i.e. numbers) from your GP practice Opt-out rights are under discussion, and it may be that in future the Department of Health will withdraw the right of citizens to prevent the extraction and uploading of their personal confidential information to NHS Digital and you may no longer be able to request a Type 1 opt-out from your GP surgery.

 A Type 1 opt-out, for as long as it is available, may prevent the extraction of your GP medical information to the Single National GP Dataset, the replacement to the now decommissioned care.data project.

Type Two NHS Digital is introducing a new tool that people can use to opt out of their confidential patient information being used for reasons other than their individual care and treatment. It will be secure and accessible, and will be available from 25 May 2018.

Visit https://digital.nhs.uk/services/national-data-opt-out-programme

The new system will offer patients and the public the opportunity to make an informed choice about whether they wish their confidential patient information to be used just for their individual care and treatment or also used for research and planning purposes. Patients who decide they do not want their confidential patient information used for planning and research purposes will be able to set their national data opt-out choice online.

NHS Digital will provide a non-digital alternative for patients who cannot or do not want to use an online system. Individuals can change their mind anytime.

Existing Type 2 opt-outs (the option for a patient to register with their GP, to prevent their confidential patient information leaving NHS Digital) will be converted to the new national data opt-out.

Patients with type 2 opt-outs will be informed of this change individually. Patients and the public will be able to use the system from 25 May 2018.

All health and care organisations will be required to uphold patient and public choices by March 2020. The national data opt-out will be introduced alongside the new data protection legislation. It is important that patients who have concerns about Data Sharing visit the NHS Digital National data opt-out programme website for the latest information: https://digital.nhs.uk/services/national-data-opt-out-program